Home Sweet Home...and Home Adjustments

Well I have left the comfort of UMNC Suites, I am back at work, I can sleep in my own bed again, pet my kitties and be a part of normal life. But normal life has changed a little bit. The hospitalizations contained several conversations. I think my CF staff took turns to hit me with what needed to be said. What was said? Well, I need to increase my respiratory therapy at home, I need to increase the respiratory medications I take at home, and I need to start an exercise regimen. This may seem like no big deal to someone reading this. The might be a no brainer from those who advised me of this. But here lies the dilemma: Theatre and bad health don't mix. Both need lots of time....If I am at work all day starting at 9am, and am going straight to rehearsals after work, and then I get to go home after that...that puts me home at about 9 or 10 or 11pm....then they want me to do all the added regimens. This regimen will take about 45 minutes. I should do the same regimen in the morning.

From Beach to Cubicle

I just had a fabulous week of working the big conference I mentioned in my last entry; the Great Plains Theatre Conference (GPTC). What a WONDERFUL experience! I want to say to all reading this and who were there, thank you for all your help, support friendship, smiles, hugs, play readings, performances, words of wisdom; everything! Such a joyous time!

Spring blooms more changes.

Hello everyone,

It's been about four months or so since I have given an update. A lot has been happening. After finishing my hospitalization in January, which went extremely well, life kicked into full gear. I went out of town three times; two for work, once for pleasure. Most of you know, this is great because I LOVE to travel. I got to go to Memphis; nothing beats a bit of warm weather in February along with some "true" Southern Sweet Tea and getting inundated with FAB Elvis everywhere! Now, I am going through Sweet Tea withdrawal! I also got to visit a dear friend of mine in Oxford, MS; got a tour of Ole Miss. That was fantastic! My other two trips were to St. Louis. St. Louis doesn't seem to like me. It gets cold every time I am there. A very good sign I should NOT pick St. Louis as the place to go for my transplant!

Got Oxygen?

This question on top of Pikes Peak at 14,110 feet is very funny and ironic at the same time. I immediately bought a t-shirt and the expression always makes me smile. But this question, in Omaha at 936 feet somehow loses all it's humor.

Remember from my last entry, breathing tests went up, but I still felt like I couldn't breathe. Well, I have been through a battery of tests. Heart tests that came back normal, scans that came back normal. But now this week, I have redone breathing tests and pretty much failed them all!...My functions are back down to 34%!! My infection level (blood test) is way up. And they had me do two new tests: a walking test and a sleeping test; they measured oxygen levels during both, and my oxygen levels sunk on both occasions.

$5 February

Hello everyone,

We are starting a new campaign! "$5 February".

We are asking you to donate $5 to my campaign, and then spread the word to 10 of your friends to donate $5 as well. And then have them spread the word to 10 people; and so on.

The goal is to get 10,000 people to donate $5 during the month of February.

This is so exciting, and I really think we can do it! Email your friends, text your friends, facebook your friends, you name it; let's technology the heck out of this $5 February!!



Hard works pays off.

Hello everyone,

It has been quite some time since I have made a journal entry; so I have a lot to catch you up on. But I will try to be short and sweet.

After The Odd Couple night out, my world took a 180. Long story short, I needed to fill in out on the road with our East Coast Tour as Stage Manager. And oh, what a time it was! For those who do not know our East Coast Tour, it is fast paced, energizing and busy. I was out for 18 days. In that time, I traveled to 13 cities. The days were long, hardly any down time; and I loved about every second of it. (Especially when we got to Florida!!!) It was a exhausting and exhilerating at the same time. But the best part is I got to learn some new things; after being with the caravan for nine ACC seasons now, I couldn't believe how much I could still learn!

The Odd Couple thank you

Thank you everyone for a wonderful night/showing at The Odd Couple tonight. A big extra mention of gratitude to the Downtown Space; Blue Barn and Brigit St. Brigit Theatres for holding the fundraiser for me. The added performance and cooperation from everyone that it takes to do so rests in my heart with great love and affection. Thank you for supporting me on this journey!

Cratchit Energy Found!

Well, I did it! I made it through A Christmas Carol. And what a wonderful time it has been.

Not without sacrifices, though. On October 31, I had to put one of my kitties to sleep. Her name was Matches, and she was 16 years old. She was my little baby, and I miss her a lot!

The caravan technicians arrived three days later and then the actors after that. Time to rock and roll! Things really clicked along. Except during the process, I lost my dear, dear CF friend, Lori Wirth. I love you Lori! Dealing with CF is not going to be the same without you!!!

One good thing came out of the process. During the visitation for Lori, I met Jason. Jason had a transplant three years ago and is doing very well! He is the transplant King! He had some great advice for me, and we are going to meet again sometime in December.

More drugs

Well, I had my appointment this week.I've continued with about five cough attacks a day. Usually one wakes me up in the middle of the night. I called it right. He put me on more medications; not just one, but three. But that's ok; need to stop these cough attacks.

He's not concerned about my weight, but I guess I'll never be totally satisfied with that.

 And on that note; only a short update. As I head into the busy time period, starting in a week, hopefully these meds will kick in. I need the energy. Cratchit energy, I call it.

Forward Momentum

Hello Friends,

Well, now that I have gotten used to the idea of getting this campaign going, it's time to get some forward momentum going. Fundraising ideas are being put together by my team. In the mean time, working on the simple things need to be underway. That's where you come in. Do me a favor and please email all your friends. Have them email all their friends. Spread the word. Send them all to my site. Even if each person just gave one dollar, the money would be raised in no time! And trust me, I am thankful for every dollar! This is going to be a long road.

Syndicate content